Death sentence and 1 family's Game Plan

by msames (Subscribe)

Posted on: May 9, 2008 at 2:22 AM EDT

Channel: Local News

Tags:

Health Science Giant Axonal Neuropathy GAN Hannah's Hope Fund

Life was perfect. And then suddenly, it wasn't. We had 3 beautiful daughters, Madion 9, Reagan 6, and our little Hannah just turned 4. On March 27th, we were told that Hannah was diagnosed with Giant Axonal Neuropathy. It is a rare, untreatable and incurable disease. GAN slowly eats away the essence of the perosn. Kids usually die in their 2nd or 3rd decade of life. We don't accept that prognosis. We have ID'd the medical research group that has done the most work with GAN and they believe they can cure it. We just need to fund them so they can resume their studies. www.hannahshopefund.org is our website and video story.


Hannah's Hope from Matt Sames on Vimeo.

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